This was a very difficult post to write. I started it in several different ways, none of which seemed satisfactory. So I’ll just say it straight out. Yesterday afternoon, Lisa was admitted to an in-home hospice program.
Her weakness, fatigue, weight loss, and metastatic disease, have all progressed to the point where in-home hospice care is the best option for her at this time. This program will allow her to remain at home and still get the palliative care, nursing services, and equipment required to make her as comfortable as possible.
For the past year or so, her weight has been continually declining. I’m guessing that she is down to about 100 pounds, but we don’t know for sure since she is so weak that she can’t stand on the scale by herself. The last accurate reading was 104 a couple of weeks ago. The recent colitis (bowel inflammation) episode seems to have subsided, but she still experiences periodic nausea and belly pain, especially after eating. Obviously, this hinders her ability to maintain or gain weight.
Due to weakness and fatigue, someone needs to support her anytime she is on her feet. Since the short trip to the bathroom will exhaust her, she spends much of her time in bed. Because getting her into and out of bed is a struggle, hospice is delivering a hospital bed to the house today. This bed will be a much more convenient when helping her move around and should be much more comfortable for her due to its adjustability.
She has been off of treatment for just over a month and there is evidence of disease progression. One can easily see and feel enlarged lymph nodes on the left side of her neck and she does complain about pain in this area. She hasn’t had any scans recently, but I fear that other affected areas are beginning to progress as well.
Unfortunately, she is too weak to be considered for another course of treatment at this time. And, the fact of the matter is that, there are no good treatment options left. The quiver is empty.
Not surprisingly, Lisa continues to remain positive and in good spirits.